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Hospital Stay

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Kadri
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« on: August 09, 2011, 01:57:00 am »

I'm not really sure where to begin... Everything has been in an uproar since Sunday morning.

Landen has been sick for two and a half weeks now. He started running a low-grade fever on July 22nd and his appetite slacked off. We found an ulcer on his tongue on the 24th (explaining his decreased appetite)... and things just seemed to go downhill from there.

The fever never went away. Neither did the ulcer. His temperature started going up and he developed more ulcers on his tongue and sores on his lips that looked like they might be fever blisters.

A week in, we went to the Take Care clinic in Walgreens to see one of the nurse practitioner (it was late Friday, July 29th, so the pediatrician was out of the question). Things didn't improve over the weekend, so we went to see his regular pediatrician on Monday. Still no concrete diagnosis. We went home with a broad-spectrum antibiotic and paste to put on his mouth... and four days into that antibiotic (Friday and Saturday, August 5-6th), Bug's fever started climbing higher, faster, and it was starting to resist the Motrin we gave him to bring it down.

Sunday morning, everything went to hell. Bug's fever spiked again. It was 104.5 when we woke him up, so we dosed him with more Motrin and took him to the minor emergency. From there, we were sent to the local hospital for chest x-rays and paperwork to have blood drawn... and from there, we learned that there was something wrong with Landen's blood (they drew twice--they thought the first sample was tainted, and they said it seemed "watered down"... and then when the second sample came in the doctor said it looked like the blood of a chemotherapy patient). Basically, they said his bone marrow production had shut down.

We were sent to Memorial Children's (downtown) by ambulance late that afternoon... and a few hours (and a couple more blood tests) later we were transferred again--this time to MD Anderson, which is a hospital that specializes in cancers and cancer treatments.

After even more blood testing, our newest in a long slew of doctors recommended that Bug have a bone marrow biopsy to determine what was making him sick... and we did the biopsy yesterday (Monday) afternoon, and the results came back a few hours later.

Long story short, my son has leukemia.

We don't know what type of leukemia he has yet... but we should find out sometime later today (Tuesday) or Wednesday, and once we know exactly what it is we will go from there. He is supposed to go in for a spinal tap (to see if the leukemia has infected his central nervous system) and his first chemotherapy treatment sometime today, as well.

That said... I probably won't be around much for the next few weeks. I will try to keep checking in but things are pretty rough right now and I have so much on my mind...

Please just keep us in your thoughts and prayers.


Edit: Most of my updates will be on Facebook.
« Last Edit: August 09, 2011, 02:06:04 am by Kadri » Report Spam   Logged

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« Reply #1 on: August 09, 2011, 03:09:55 am »

Oh, Kadri you poor thing. That's horrible news. You can be sure I'll be sending prayers to you and Landen in enormous tidal waves. And don't you worry about us here. We can hold down the fort for as long as it takes. *hugs*
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« Reply #2 on: August 09, 2011, 11:48:33 am »

Oh wow.  And he's so young..  This really is the bad kind of incredible.  But I know you guys will get through this.  We're always here if you need us boss
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« Reply #3 on: August 09, 2011, 09:51:48 pm »

Thanks, you guys. I just wanted to post a small update while I have some downtime:

The spinal tap and the initial shot of chemotherapy went very well. Landen also had a catheter put into his chest, so we have been able to do away with the IV in his wrist (and will probably lose the one in his foot the next time they have to sedate him for something). They will also be able to use it for blood draws, so they won't have to keep sticking him. Yay~

We also got the full diagnosis this afternoon.

Landen has acute myelogenous leukemia (AML), which is the rarer of the two forms of leukemia we were told that he could have. It has a shorter treatment time (roughly 6 months), but AML comes with a harsher, more aggressive chemotherapy plan, and there is a greater chance of relapse.

We will start phase one of the chemo plan tomorrow, and it should last about two weeks (which means we'll be living in the hospital for at least the next two weeks, possibly longer)... so please wish us luck, and keep sending those prayers and positive thoughts. ♥
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« Reply #4 on: August 10, 2011, 01:43:57 pm »

God Kadri, I don't even know what to say. That's really horrible, I'm so sorry.
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« Reply #5 on: August 12, 2011, 07:15:34 pm »

Positive thoughts, Arcy. I'm just taking it one day at a time.

We've started his first round of chemotherapy treatments and all seems to be going pretty well. He is tired and lethargic most of the time (from the chemo and because his platelets were so low), but he's been in good spirits for most of today and I'm hopeful that the longer the treatment goes on the better he will feel.

They have us on room isolation right now, so anyone that comes in has to "suit up" with a protective gown over their clothes and if we go out we have to do the same thing. It's to keep anyone from bringing any bugs into the room for him to catch. One of the nurses said we might be able to get out of isolation in a few days, so maybe next week we will be able to take Landen out to the play room or something instead of being cooped up in this tiny room all day. (I'm beginning to feel a little stir crazy.)
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« Reply #6 on: August 12, 2011, 10:48:19 pm »

Aww that is good news to hear. Your little boy is quite the trooper. He must get that from you. :3
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« Reply #7 on: August 20, 2011, 04:54:28 am »

Sooo... I guess it's about time for another update.

We are still on room isolation. Apparently it's really hard to get taken off isolation once they put that sign on the door... and since Landen's immune system is suppressed right now we're probably just going to stay on isolation until we go home. Goody, goody.

Landen's fevers have slacked off some this week. They are becoming more infrequent, and most of them have stayed below the 104 degree mark (when he was having temps as high as 104.5)... And after an entire week of not wanting to eat, when we had to resort to using medicine droppers to feed him protein drinks and yogurt, his appetite is finally starting to come back. Definitely a good sign.

In the last 2-3 days we've also done chest x-rays, a chest CT scan, and an ultrasound to make sure that everything still looks good internally, and to make sure that there aren't any signs of infections (or other nasty side effects that can occur from weeks of bed rest and all of the drugs they've been pumping into Bug's system). From what I've been told, it sounds like there isn't anything nasty lurking in any of the x-rays, scans, or ultrasound pictures... so I'm crossing my fingers that we're good on that score.

Additionally, Landen JUST finished his last dose of chemo for this stage of his chemotherapy plan (20 treatments over 10 days)... and now we get to play the waiting game. It should take about 2-3 days to flush the chemo drugs from his system and then we have to just wait and see what happens. We won't be able to go home until Landen's blood counts come back up, and he has to be cleared of any infections and fevers. According to the doctor, it will be at least another week or two before we're good to go... possibly longer.

Keep your fingers crossed. <3
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